Thursday, 9th March Cancer Survivorship Conference 2023

Welcome to Country - Jack Buckskin

Official Opening - Bogda Koczwara and Dion Forstner 

Bogda Koczwara  - Introduction

• What a difference 10 years makes - Monique Bareham

COSA Survivorship Group Chairs:

• Haryana Dhillon
• Michael Jefford
• Ray Chan

Panel discussion and Q&A

• The burden of sleep problems among people diagnosed with cancer  - Robert Adams
• Do you have the privilege of good sleep? - Amy Reynolds
• Supportive Care Interventions for Sleep after a Cancer Diagnosis  - Joshua Wiley

Panel discussion

• Feasibility of co-admitted ambassador classmates as facilitators of social-, physical- and educational rehabilitation activities for children with cancer in the RESPECT study - hanne Baekgaard Larsen
• Symptom clustering in patients with cancer screened for symptoms with the Edmonton Symptom Assessment Scale. - Bogda Koczwara
• Machine learning insights into Victoria’s Cancer Council 131120 information and support service - Nikki McCaffrey

• Developing an international self-management support practice framework for addressing cancer-related fatigue - Andi Agbejule
• Patient perceptions of a brief education intervention delivered at the end of a chemotherapy course - Anna Beaumont
• Patient perceptions of a nurse-led end of radiotherapy treatment consultation  - Anna Beaumont
• Thriving at any age, any stage, anywhere: Redefining survivorship support for the blood cancer community. - Jenni Bourke
• Adapting a web-based intervention (RESTORE) to support self-management of cancer-related fatigue in people living with brain cancer - Rachel Campbell
• Screening for unmet needs of people affected by brain cancer: identifying brief screening measures - Rachel Campbell
• Solidarity in survivorship – how shared experience gives us a voice - Kerri Candie
• A new Oncology Occupational Therapy Service at Bendigo Cancer Centre  - Jessica Cozens
• Cancer survivor preferences for models of breast cancer follow-up care: Findings from a discrete choice experiment - Fiona Crawford-Williams
• Exercise and diet support in Australian breast and prostate cancer survivors: A focus group study - Jack Dalla Via
• Patient information about heart health after cancer: an audit of Australian resources - Abbey Diaz
• Making Metastatic Breast Cancer Count - Vicki Durston
• How do we safely identify survivors and help them share their 'lived experience' of living with blood cancer?   A project summary depicting how the Leukaemia Foundation used a digital solution to drive organisational-wide change to respond to primary survivorship needs. - Matthew Eby
• Barriers and enablers of weight management after breast cancer: a thematic analysis using the COM-B framework - Carolyn Ee
• Frequency and severity of breast symptoms reported by women in the first year after breast conserving surgery and radiotherapy: a cohort study. - Nicola R Fearn
• Exercise and lifestyle insights from women diagnosed with breast cancer: A case series of Western Australian interviews - Bri Fleay
• Can social relationships form between participants of an online group exercise program for people with cancer? - Elise M. Gane
• Colorectal cancer survivor experiences of shared and telehealth-based models of survivorship care: a qualitative study - Claire Gore
• Returning to work after breast cancer: case studies from women who participated in our Beyond Cancer program - Georgia KB Halkett
• Return to valued activities: Survivors’ experiences of adaptation and growth after treatment for head and neck cancer - Georgia KB Halkett
• A scoping review on dietary supplements for malnutrition and malnutrition-related conditions in people with metastatic cancers - Chad Han
• Sleep disturbance in men with metastatic prostate cancer: Associated factors and impact on quality of life - Eleanor Handel
• Embedding survivorship into standard care for early breast cancer patients   - Zeina Hayes
• “Examining the difficulties faced by newly transitioned, younger generational cancer survivors, in achieving the 6 domains of wellness” - Yasmin YH Hibberd
• Continuity through Covid for 'Survivors as Teachers' - Daniel Johnstone
• Benefits of supportive strategies for carers of people with high-grade glioma - Diana Jones
• Improving the quality of care for adolescents and young adults (AYAS) as they transition from active cancer treatment to early survivorship - Melissa Jones
• Optimising referral practices to dietary and exercise services for cancer survivors - Ria Joseph
• Living with chronic immunotherapy toxicities: The unexpected outcomes for patients surviving metastatic melanoma - Claire Kelly
• Health literacy, digital health literacy, and digital inclusion: can digital implementation of cancer care reach far enough, and in the right direction? - Emma Kemp
• Self-reported sleep issues in cancer survivors attending Sydney Cancer Survivorship Clinic (SCSC) - Kim Kerin-Ayres
• Exploring the provision of supportive care to colorectal cancer survivors in general practice setting - Bora Kim
• Evaluation of a specialist nurse-led survivorship consultation in a gynae-oncology service - Nicole Kinnane
• Prevalence of distress and its associated factors among caregivers of people diagnosed with cancer: A cross-sectional study - Deborah Kirk
• Perceptions of people with cancer regarding cardiovascular disease (CVD) risk in cancer: A qualitative study  - Reegan Knowles
• Hearing all their voices: Consulting stakeholders about research priorities for AYA cancer survivors - Tayhla Ryder
• A meta-analysis of health behaviour interventions addressing quality of life among post-treatment cancer survivors. - Morgan Leske
• Evaluating the feasibility of a co-designed, online healthy living intervention for post-treatment cancer survivors: Healthy Living after Cancer Online.   - Morgan Leske
• Strategies for sustainability: Implementation insights for long-term sustainment of programs that routinely collect Patient Reported Outcomes (PROs) in cancer care clinical settings - Carolyn Mazariego
• The blood cytokine profile of cancer patients may not accurately reflect the brain cytokine response - Delyse J McCaffrey
• Disconnections and reconnections in chronic care post-transplant: Experiences and preferences of HSCT survivors, carers and GPs/GPNs with transitional care from hospital to community settings. - Gemma McErlean
• The ‘Good Life – Cancer Survivorship’ program – implementation of a model of allied health survivorship cancer care within a community health setting - Rebecca McIntosh
• Has the COVID-19 pandemic impacted provision of information about Cancer Council supportive care services to people affected by cancer?   - Annie Miller
• Surviving breast reconstruction: what information would help women? - Sam Mills
• Enhancing access to supportive care services for people affected by cancer, do Cancer Council Liaisons make a difference? – healthcare professionals’ perspective - Penelope Murphy
• What is the experience of consumers receiving and accessing cancer survivorship care across Victoria? - Tegan Nash
• Health professionals’ priorities to enhance the delivery of survivorship care in Victoria - Tegan Nash
• The health outcomes in people with cancer and comorbidities: the Australian National Health Survey analysis - Huah Shin Ng
• An exploration of parental carers and young adults diagnosed with sarcoma, during post-treatment survivorship in Australia - Moira O'Connor
• Improving Screening for Peripheral Neuropathy during Cancer Treatment - Susanna Park
• Out with Cancer: LGBTQI Cancer Survivorship and Care - Julie Rae
• Trajectories of health-related quality of life among Australian women cancer survivors: A longitudinal analysis of patient-reported outcome - Md Mijanur Dr Rahman
• Nurse-led interventions for improving sexual function following cancer: a systematic review - Claudia Rutherford
• Longitudinal studies with AYA cancer survivors: How to improve recruitment and retention - Tayhla Ryder
• Online peer support for adolescent and young adult cancer survivors during, and beyond, the pandemic: Implementing Recapture Life in community settings - Ursula M Sansom-Daly
• Can better communication support quality of survivorship, even when cure is uncertain? - Ursula M Sansom-Daly
• Counterpart’s service expansion – lessons for peer support in a small cancer support organisation - Jan Savage
• Recruiting and selecting cancer Peer Support Volunteers – what does success look like? - Jan Savage
• Exploring the barriers to optimal survivorship care for people living with Cancer in NSW - Jessica Sheppard
• Mapping the range and nature of advanced and metastatic cancer survivorship research within the field of ‘cancer survivorship’ in Australia: a scoping review - Andrea L Smith
• Rationale and Design for the Statins and Progression of Coronary Atherosclerosis  in Melanoma patients Treated with Immune Checkpoint Inhibitors (SOCRATES) Trial - Sean Tan
• Fear of cancer recurrence in people attending the Sydney Cancer Survivorship Centre clinic (SCSC) - Sim Yee (Cindy) Tan
• Capitulation, re-evaluation, and recalibration: Agency and head and neck cancer survivorship  - Carla Thamm
• A systematic review of the psychometric properties of instruments/tools used for measuring financial toxicity in people with cancer - Lebogang Thomy
• Protocol for a single-arm feasibility study of a group-based telehealth cognitive behavioural therapy program for insomnia in Vietnamese-speaking cancer survivors - Mei Tran
• Circadian disruption changes the inflammatory response to cancer in an organ-dependent manner in a mouse model of breast cancer.   - Adam K Walker
• Improving mental health and wellbeing in women living with or beyond breast cancer: preliminary findings from the Plus1 Study - Hannah R Wardill
• Divide and Conquer Fear: Adapting an intervention for ovarian cancer survivors - Kyra Webb
• Measuring Fear of Cancer Recurrence and Progression in Caregivers: What we know and where to next - Kyra Webb
• Enduring work participation - Sue Woodall

• What’s LGBT+ got to do with cancer? - Tara Winston
• Trauma, psychological disorders, and the interaction with cancer  - Brian Kelly

Panel discussion using case scenarios to illustrate risk of culturally unsafe care and measures to increase cultural safety.  

• Finding My Way-Advanced: A pilot evaluation of a self-directed online psychosocial intervention in improving fear of cancer progression, distress and QOL in metastatic breast cancer - Lisa Beatty
• Return to Work of Cancer Survivors and the Impacts of Cognitive Impairments: a mixed methods study - Yook Wai J Liu
• An international replication randomised controlled trial of a cancer survivorship eHealth intervention: Preliminary Findings from the Finding My Way UK Clinical Trial - Nicholas J Hulbert-Williams

Team 1: Ray Chan, Carolyn Taylor, Carolyn Mazariego

Team 2: Michael Jefford, Larissa Nekhlyudov, Fiona Crawford-Williams